Refusal to Participate - Ethics
Research News and Information

Sunday, November 22, 2009

Biobank research and the right to privacy.

13 Oct 2008 What is privacy? What does privacy mean in relation to biobanking, in what way do the participants have an interest in privacy, (why) is there a right to privacy, and how should the privacy issue be regulated when it comes to biobank research? A ... Read more...

Against the inalienable right to withdraw from research.

26 Jun 2008 In this paper I argue, against the current consensus, that the right to withdraw from research is sometimes alienable. In other words, research subjects are sometimes morally permitted to waive their right to withdraw. The argument proceeds in three ... Read more...

Mass-vaccination programmes and the value of respect for autonomy.

30 May 2008 Respect for autonomy is problematic in relation to public health programmes such as vaccination, as the success of such programmes depends on widespread compliance. European countries have different policies for dealing with objectors to vaccination ... Read more...

Latest indexed articles for 'Refusal to Participate - Ethics'

These are the very latest articles for this heading:

• Morals, medicine and geography. 2 Nov 2008
• Biobank research and the right to privacy. 13 Oct 2008
• Refusal of consent for video recording during standard EEG. 30 Aug 2008
• Against the inalienable right to withdraw from research. 26 Jun 2008
• Mass-vaccination programmes and the value of respect for autonomy. 30 May 2008
• ACOG Committee Opinion No. 385 November 2007: the limits of conscientious refusal in reproductive medicine. 30 Oct 2007
• Informed consent: interpretations and practice on social surveys. 16 Sep 2007
• A taxonomy of reasoning flaws in the anti-vaccine movement. 16 Jan 2007
• Do aid agencies have an ethical duty to comply with researchers? A response to Rennie. 29 Apr 2006
• Is it ethical to study what ought not to happen? 29 Apr 2006
• Justified commitments? Considering resource allocation and fairness in Medecins sans Frontieres-Holland. 29 Apr 2006
• Medecins sans Frontieres under the spotlight. 29 Apr 2006
• Judge allows device to be used for monitoring lethal injection. 16 Apr 2006
• Taking the least of you: most of us have tissue or blood samples on file somewhere, whether we know it or not. What we don't typically know is what research they are being used for or how much money is being made from them. And science may want to keep things that way. 14 Apr 2006
• State proposes using device, not doctors, in execution. 11 Apr 2006
• Assent in paediatric research: theoretical and practical considerations. 30 Mar 2006
• Questions over method lead to delay of execution. 20 Feb 2006
• Implementation of informed consent for a cystic fibrosis newborn screening program in France: low refusal rates for optional testing. 30 Aug 2005
• Potential harms, anonymization, and the right to withdraw consent to biobank research. 30 Aug 2005
• Public health. Conscientious objection and the pharmacist. 8 Jun 2005

See a longer list of these articles.

Technical information about 'Refusal to Participate'

Definition: Refusal to take part in activities or procedures that are requested or expected of an individual. This may include refusal by HEALTH PERSONNEL to participate in specific medical procedures or refusal by PATIENTS or members of the public to take part in CLINICAL TRIALS or health promotion programs.

Descriptor UI: D045808

Alternative terms: Refusal to Participate; Participate, Refusal to;

Related Mesh Headings: Conscience; Patient Participation; Refusal to Treat; Treatment Refusal;

Allowable Qualifiers: ethnology; ethics; history; legislation & jurisprudence; psychology; statistics & numerical data;

Tree Number: F02.463.785.373.476.850;

History Note: 2004; use DISSENT AND DISPUTES 2003