Comparison between Children with Juvenile Idiopathic Arthritis (JIA) and their parents concerning perceived Quality of Life.

Full Abstract

The aim of the study was to determine the level of agreement between the perceptions of children with JIA and their parents concerning quality of life. Fifty patients aged 9-18 years and their parents, who attended the JIA clinic at the Montreal Children's Hospital, completed the Juvenile Arthritis Quality of Life Questionnaire (JAQQ). Paired t-tests were employed to compare parents' and children's scores and agreements were analyzed by intraclass correlation coefficients (ICCs). Linear regression was used to explore factors associated with agreements and with the perceptions of quality of life. ICCs (95% confidence interval) for the subscales of the JAQQ were 0.62 (0.42,0.77) for gross motor function, 0.35 (0.08,0.57) for fine motor function, 0.61 (0.41,0.76) for psychosocial function, 0.70 (0.52,0.82) for systemic symptoms and 0.60 (0.38,0.75) for pain. Agreement was higher for psychosocial function among younger children and for overall quality of life among those who had the disease longer. Higher agreement levels on pain were associated with more severe disease. Disease severity was associated with perceptions of quality of life (p < 0.01). There seems to be good agreement between the perceptions of children with JIA and their parents concerning quality of life, except for fine motor function.

Learn Faster Today Improve your study skills

Author information

Author/s: April, Karine Toupin (KT); Feldman, Debbie Ehrmann (DE); Platt, Robert W (RW); Duffy, Ciarán M (CM);

Affiliation: Ecole de Réadaptation, Université de Montréal, C.P. 6128, Succ. Centre-ville, Montreal, Quebec, H3C 3J7, Canada. k.toupin.april(-atsign-)umontreal.ca

Journal and publication information

Publication Type: Comparative Study; Journal Article; Research Support, Non-U.S. Gov't

Journal: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (Qual Life Res), published in Netherlands. (Language: eng)

Reference: 2006-May; vol 15 (issue 4) : pp 655-61

Dates: Created 2006/05/11; Completed 2006/08/04; Revised 2006/11/15;

PMID: 16688498, status: MEDLINE (last retrieval date: 12/26/2008)

Sourced from the National Library of Medicine. Abstract text and other information may be subject to copyright.

External Links for this article (including full text providers, if available):

Click Electronic Full-text Provider Links to see options for finding the electronic full text links to this article. Note there may be a subscription or fee required for access to the full text. See our FAQ for information on finding FREE full text articles.

This article may also be located in paper journal collections available in many libraries. Use the Journal and Publication Information above to find the full article.

MeSH headings (categories)

This article was linked to the MESH Headings shown below.

Adolescent
Arthritis, Juvenile Rheumatoid - physiopathology
Child
Disabled Children - psychology
Hospitals, Pediatric
Humans
Pain - etiology; psychology

Pain Measurement
Parents - psychology
Quality of Life - psychology
Quebec
Questionnaires
Sickness Impact Profile
Social Perception

These are the highest related articles currently in the database:

See 100+ related articles.