Psychometric properties of the initial Brazilian version of the CHQ-PF50 applied to the caregivers of children and adolescents with cerebral palsy.

Full Abstract

GOALS:
To evaluate the psychometric properties of the initial Brazilian version of the Child Health Questionnaire(CHQ-PF50) in children and adolescents with cerebral palsy(CP).

METHODS:
The caregivers of 5- to 18-year-old children and adolescents with CP answered the self-administered CHQ-PF50 questionnaire. Data quality, reliability and validity were studied. The Gross Motor Function Measure was used to assess physical function.

RESULTS:
Ninety-six caregivers answered the questionnaire. Patient age ranged from 5 to 17.9 years (mean:
9.3 years). Missing data rate was low. Floor effect occurred in 3 scales and was substantial for quadriplegia group (63.6-77.3%). Ceiling effect occurred in 9 scales. Reliability was adequate for all scales except for the general health perception scale (Cronbach alpha coefficient = 0.24). The validity was adequate in general, but the role/social limitations-emotional behavioral scale was not satisfactory for discriminant and divergent validity.

CONCLUSION:
The initial Brazilian version of the CHQ-PF50 showed, in general, adequate psychometric properties for application in patients with CP. Although floor and ceiling effects are expected in heterogeneous group as a limitation inherent to generic assessment instruments, they must be carefully considered in further studies. The general health perception and role/social limitations-emotional behavioral scale must be further reviewed for this population.

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Author information

Author/s: Morales, Nívea de M O (Nde M); Silva, Carlos H M (CH); Frontarolli, Ana C (AC); Araújo, Renata R H (RR); Rangel, Viviane O (VO); Pinto, Rogério M C (RM); Morales, Rogério R (RR); Gomes, Débora C (DC);

Affiliation: Department of Surgery, Neurologic Propedeuthic Division, Universidade Federal de Uberlândia (UFU), Associação de Assistência à Criança Deficiente (AACD), R. Rodrigues da Cunha, Uberlândia, Minas Gerais, 38400-362, Brazil. niveamacedo(-atsign-)mglink.com.br

Journal and publication information

Publication Type: Journal Article; Validation Studies

Journal: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (Qual Life Res), published in Netherlands. (Language: eng)

Reference: 2007-Apr; vol 16 (issue 3) : pp 437-44

Dates: Created 2007/03/05; Completed 2007/06/05;

PMID: 17334831, status: MEDLINE (last retrieval date: 12/26/2008)

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MeSH headings (categories)

This article was linked to the MESH Headings shown below.

Adolescent
Adult
Aged
Brazil
Caregivers - education; psychology
Cerebral Palsy - physiopathology; psychology; rehabilitation
Child
Cross-Sectional Studies
Disabled Children - psychology; rehabilitation

Female
Humans
Male
Middle Aged
Proxy
Psychometrics - instrumentation
Quality of Life
Questionnaires
Sickness Impact Profile

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