What are patients' priorities for palliative care research? Focus group study.

Full Abstract

To elucidate the research priorities of palliative care patients we conducted focus groups with day therapy and hospice in-patients with cancer with an estimated prognosis of 6 months or less. Patients were positive about taking part in this research project identifying five main priorities for future research--talking with patients; help for patients and families; oncology; symptoms; medication/treatments. Patients gave great emphasis to communication issues and little to symptom control. A patient questionnaire was created with these themes which is currently being used in five hospices across East Anglia. This paper describes the qualitative component of the study.

Author information

Author/s: Perkins, P (P); Barclay, S (S); Booth, S (S);

Affiliation: Sue Ryder Care St John's Hospice, Moggerhanger and Hinchingbrooke Hospital, Huntingdon, UK. paul.perkins(-atsign-)suerydercare.org

Journal and publication information

Publication Type: Journal Article; Research Support, Non-U.S. Gov't

Journal: Palliative medicine (Palliat Med), published in England. (Language: eng)

Reference: 2007-Apr; vol 21 (issue 3) : pp 219-25

Dates: Created 2007/07/20; Completed 2007/09/27;

PMID: 17641075, status: MEDLINE (last retrieval date: 2/18/2009, IMS Date: )

Sourced from the National Library of Medicine. Abstract text and other information may be subject to copyright.

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